The Most Important in Brief

We dream of a world in which patient engagement, good science, pharmaceutical excellence and health authorities come together to address the medical needs of rare diseases patients, ultimately alleviating the healthcare burden of their conditions.

1. Purpose (SOGC)

   la Fondation est à but non lucratif; la Fondation a pour buts de promouvoir la recherche et le développement de nouvelles solutions thérapeutiques et leur accessibilité aux patients (es), y compris dans le domaine prénatale et de façon plus générale, d'améliorer la prise en charge médicale de patients (es) atteints (es) de maladies rares incurables et d'autres affections négligées.

2. The Most Important in Brief

   We dream of a world in which patient engagement, good science, pharmaceutical excellence and health authorities come together to address the medical needs of rare diseases patients, ultimately alleviating the healthcare burden of their conditions.

Area of Impact

• Switzerland